Tag Archives: fragile x syndrome

  • -

Where is the Hope?

Tags : 

Great Read: A grandmother of a newly diagnosed grandson once called me to talk about the diagnosis. “Where is the hope?” she asked  https://fragilex.org/2017/community/where-is-the-hope/


  • -

Welcome Dr. Elizabeth Will!!

Tags : 

Starting this July, the Neurodevelopmental Lab will have a new postdoctoral fellow as part of our research team!!  Dr. Elizabeth Will is coming to us from Colorado State University where she received her Ph.D. in Applied Developmental Science.  Dr. Will’s postdoctoral research will focus on delineating syndrome-specific vulnerabilities and underlying psychophysiological mechanisms contributing to differential outcomes for individuals with fragile X syndrome.


  • -

Dr. Jane Roberts gave a talk at UC Davis Distinguished Lecture Series

Tags : 

Dr. Jane Roberts participated in UC Davis’ Distinguished Lecture Series on April 12th 2017.  Her talk was entitled, Biobehavioral Profiles in Infants with Fragile X Syndrome: Emergence of Autism and Anxiety in Fragile X Syndrome.   She spoke about characterizing the phenotype of fragile X syndrome, the leading known single-gene cause of autism spectrum disorders. In addition, Dr. Roberts talked about her latest research which focuses on the role of anxiety in autism and their interface across the developmental spectrum.


  • -

Congratulations to Sara Matherly!!

Tags : 

A big congratulations to Sara Matherly who received $5,000 funding from the University of South Carolina through the SPARC Graduate Research Grant Program! Sara, a graduate student in the School Psychology Ph.D. program, will be attending a training on the Anxiety Disorders Interview Schedule and Autism Spectrum Addendum to capture distinct profiles of anxiety in autism spectrum disorders. This will help to better understand the impact of anxiety across multiple domains impacting young adult independence within cross-syndrome ASD.


  • -

Dr. Abigail Hogan presents to the CAS Board of Visitors!

Tags : 

Dr. Abigail Hogan presented her poster on Neural Processing in Fragile X Syndrome and Autism to the CAS Board of Visitors on December 2, 2016. It was an honor to present the experimental design of our NIH-funded preschool grant to a governing body of the College of Arts and Sciences.


  • -

Our FXLA participant, Jeffrey Creighton, was featured on ABC News!!

Tags : 

We are overjoyed to see that Jeffrey was able to play football for his high school team!  It is beautiful to see so many people come together to support him and we consider it a big win for people struggling with developmental disabilities!!   Great news about a wonderful family:

http://abcnews.go.com/WNT/video/high-school-football-manager-suits-time-43347012


  • -

Anxiety Grant Funded by the National Institute of Health!

Tags : 

In September 2016, Dr. Jane Roberts was awarded funding by the National Institute of Mental Health for the project entitled: Emergence, Stability and Predictors of Anxiety in Fragile X Syndrome.  It is the first longitudinal developmental study of the early features of anxiety in very young boys with FXS contrasted to boys diagnosed with ASD (non-FXS) and typical controls.  The study analyzes the age which initial features of anxiety can be detected and the stability and prognostic value of these early symptoms.  Our lab is eager to start work on this exciting new project!!


  • -

Infant Grant from NIH approved for Extension!

Tags : 

In 2011, Dr. Roberts was the recipient of a five year NIH R01 grant entitled “Emergence and Stability of Autism in Fragile X Syndrome.”  In this study, Dr. Roberts and her team analyzed the behavior of infants who were at high risk for developing autism. She has now been awarded 3.1 million dollars from NIH to follow-up of these infants and track their development into their preschool years!  With this new award, the team at the Neurodevelopmental Lab will be able to follow the development of the infants from 9 months-of-age to 5 years-of-age and identify which features during infancy were predictive of  developmental delays in the infants at high risk for developmental impairments.  This information will then be translated to efforts targeting early identification and treatment.


  • -
Carly Moser

Carly Moser awarded Magellan Grant

Tags : 

Carly Moser was named a Magellan Scholar in May 2016 and awarded a grant to fund research on the relationship between autonomic function and psychosocial outcomes in mothers with the FMR1 premutation.  Congratulations Carly!


  • -
Fragile X Society

Research featured by the Fragile X Society

Tags : 

New research by members of the Neurodevelopmental Disorders Lab has been recently highlighted by the Fragile X Society. This research focuses on reading development and the role of phonological skills in boys with fragile X syndrome. Read more about our research and potential implications for teaching children with fragile X syndrome to read!


Learn how you can take part in our research