Tag Archives: awareness

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FXS Awareness Day

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In the heart of South Carolina’s capitol, Dr. Jane Roberts, Dr. Jessica Klusek, Robin Blackwood, and the Kuperman family shared their personal experiences with Fragile X syndrome in honor of the proclamation of July 22, 2018 as Fragile X Awareness Day.  Thank you to everyone who came out to the State House to celebrate this declaration and to everyone who has played a role in raising awareness, advocating for policy, and fostering a welcoming community!

 


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Advocating for Children’s Health

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Local community leader, Robin Blackwood, headed to Washington, D.C. to share the story of her son Sam, who was diagnosed with fragile X syndrome, with legislators. Blackwood joined parents from around the nation as part of the 14th annual Speak Now for Kids Family Advocacy Day. Blackwood advocated for children’s health, particularly to safeguard care for children with special needs. Thanks for bringing awareness to such an important issue! Read more about her efforts at Greenville Online and Fox Carolina.


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Join us in Lighting it Up Blue!!

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April is National Autism Awareness Month! According to the CDC, approximately 1 in 68 school-aged children have been identified with autism spectrum disorder (ASD).  This month gives an excellent opportunity to promote autism awareness and acceptance around the world. Together we can make a better world for those with autism by taking action and supporting organizations which provide support for families affected by ASD.


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