Fragile X Families in Charlotte

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fragile x families in charlotte

Fragile X Families in Charlotte

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Do you have a child with fragile X syndrome or the fragile X premutation? We are currently recruiting fragile X families in Charlotte, NC and it’s surrounding areas to participate in our research studies! We are also recruiting women who are carriers of the fragile X premutation who do not have children.

The goal of our studies is to learn about behavioral and language profiles associated with fragile X and the fragile X premutation.

  • Participation generally takes about 3 hours.
  • Participants may be asked to complete some interviews and tasks that involve words, sentences, and puzzles, depending on the participant’s age and ability level.
  • Each participant is compensated for their time and travel.
  • We can schedule the assessment at a time that is convenient for you, including weekends.

Want to learn more? Contact Jessica Klusek at klusek@mailbox.sc.edu or (803) 777-5676.


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Rainey Hughes will join the University of Houston

Rainey Hughes will join the University of Houston

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Rainey Hughes will join the University of Houston’s School Psychology PhD program for the fall of 2016. Her research at the University of Houston will focus on intervention-related issues for children with autism spectrum disorder including the influence of family factors on treatment decisions and how mental health providers implement treatments. Rainey was a USC Magellan Scholar and Undergraduate Research Assistant with the Neurodevelopmental Disabilities Research Lab here at the University of South Carolina. Congratulations, Rainey. You will be missed!

 

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Laura Hahn will join the University of Illinois

Laura Hahn will join the University of Illinois

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Laura Hahn will join the University of Illinois at Urbana-Champaign faculty in the Department of Speech and Hearing Sciences as an Assistant Professor in August 2015. Laura will continue her research on characterizing early social and cognitive abilities in infants and children with neurogenetic disorders (i.e., fragile X syndrome, Down syndrome). Congratulations, Laura!


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bridgette tones will join purdue

Bridgette Tonnsen will join Purdue University

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Bridgette Tonnsen will join Purdue University’s Department of Psychological Sciences as an assistant professor of clinical psychology in August of 2015. As part of the Purdue Autism Network, Bridgette will continue her research in the early development of children and families affected by neurodevelopmental disorders (e.g. autism, fragile X syndrome) using integrated clinical, experimental, and psychophysiological methods. Congratulations, Bridgette!


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Bridgette Tonnsen Receives Travel Award

Bridgette Tonnsen Receives Travel Award

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Doctoral candidate Bridgette Tonnsen received the APA Division 33 Graduate Student Travel Award for the 48th Annual Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities. Congratulations, Bridgette!


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recruiting mothers in sc

Recruiting Mothers in SC

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We’re Recruiting Mothers in SC! We are currently recruiting mothers of typically developing children for  our mother study.

Participants are compensated for their time. Participation in the mother study takes about 3 hours. It involves completing some interviews and questionnaires about family experiences.

Please contact Dr. Jessica Klusek by email or by phone at (803) 777-5676 if you have any questions or are interested in participating in this mother study.

This mother study focuses on understanding the range of experiences, thoughts and preferences, and communication styles that families with and without children with disabilities experience. We hope our results will help us learn the best ways to support families who have children affected by developmental disorders such as autism and fragile X syndrome. By recruiting mothers in SC, we hope to hear the wonderful stories from the moms in our community.


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Doctoral Students Receive Provost Thesis Award

Doctoral Students Receive Provost Thesis Award

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In May 2014, doctoral students Marjorie Grefer and Jessi Scherr received the Provost Thesis Award. Congratulations!


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sara mcgrath

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jessica klusek awarded

Dr. Jessica Klusek Awarded NIH Grant

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In January 2014, Dr. Jessica Klusek was awarded a Ruth L. Kirschstein National Research Service Award (F32) by the National Institute of Deafness and Communication Disorders to support her research on families of children with autism and fragile X syndrome. This parent study will examine communication styles used by parents of children with autism and fragile X syndrome, with a focus on the role of anxiety and arousal. The results of this work will help her better understand families’ experiences and inform the ways that various communication styles may influence family and child outcomes.

For this parent study, Dr. Jessica Klusek is currently recruiting:

  • Mothers who have a child with fragile X syndrome
  • Mothers who have a child with autism
  • Mothers of typically developing children
  • Women who have the FMR1 premutation (i.e., who are “carriers” of fragile X)

Participants are compensated for their time. Please contact us by email or by phone at (803) 777-5676 if you have any questions or are interested in participating in this parent study.

Participation in the parent study takes about 3 hours. It involves completing some interviews and questionnaires.


Learn how you can take part in our research